Tuesday, December 27, 2011

Update On My Condition

Well, I finally got a chance to do the venography.  I was very stressed out about it because I remember the pain that I experienced in Taiwan like it was yesterday.  I just kept praying about it and made myself breathe to relax.  I was told not to eat after midnight prior to surgery.  I checked in at 5:30 am.  I did routine paperwork, got my blood taken, and then was taken to my room.  While there, I was given a gown to change into and a nurse came in to start an IV.  After the IV was started, another nurse came in to prep my groin area for the procedure.  I think we (my mom and I) waited for about 20-30 min before they came to get me for the procedure.
My bed and I were wheeled down into the room and I was very nervous and excited at this point.  I had a million things running through my mind.  The room was freezing!  The doctor came in the room and explained the procedure to me.  I told him that I understood because I had the procedure done before, but did not get the stents due to the lack of money.  I asked (actually pleaded) him to give me something for the pain because I was experiencing some anxiety about it.  He informed me that I wouldn't feel a thing.  I was able to relax after that.
I scooted over to the table and they began to sterilize my groin area.  Basically, I was exposed for a brief moment and then they covered my private area with a cloth. I remember hearing someone say that they were going to give me some numbing medicine, but I didn't realize that it was going to go through my IV.  I was expecting a big needle to the groin. Lol! Because of the medicine, it felt like the procedure took 5 min.  Ok, back to the procedure.  The initial plan was to go into the right side, across my belly, and to my left side.They tried to insert the catheter into my right side first, but they failed.  So, they moved to my left side and failed there as well.  I remember them asking if I could flip over onto my stomach and I did, but was kind of out of it.  The reason they flipped me over was because they wanted to try and go in through the back of my knee.  They couldn't get in through there so they flipped me back over and told me that they were going to go in through my neck.  I remember nodded my head okay, but was think "WTHeck!"  I didn't feel a thing!  I wanted to watch the procedure on the screen this time, but was to sedated to do so.  The procedure was probably about 2 hrs long.  Afterwards the IR said that he didn't put in the stents because he didn't think that they would work.  I was coming out of the sedation and was having a hard time understanding why I still didn't get my stents.  I was quite upset!
I had a couple doctors come into my hospital room to explain what they saw. What they saw was evidence of past blood clots that resulted in them having to weave through the veins during the procedure.  I was told to continue doing what I have been doing and to get regular check ups.  I think that my family was more upset after this second visit. I was told to buy Haynes Alive stocking because they were less expensive and they worked just as well.  I wasn't put on any blood thinners, but I don't understand why if I had previous blood clots.  So, yeah!  That's it!  I got a "Sorry, but there is nothing that we can do for you" diagnosis that left me back at square one.  I will not be giving up anytime soon.  Someone somewhere has to help me get the proper care that I have been seeking for the past 14 years.  Until then, I plan on putting things in motion for 2012  so that I can help others in my situation.